Hello! Thank you so much for visiting my site, Our Precious Charms! My name is Shelly Jimenez. My husband Sal and I are the parents of twins, Chris & Kayla. Our twins are twenty-seven years old, and our journey is a different one. Chris and Kayla were born premature when I was six months pregnant. Due to their preterm birth, they both have lifelong disabilities. Our son has been very ill since birth and requires 24/7 care. He has severe lung disease, which is now terminal. He has cerebral palsy, is blind, is tube fed, and has brain damage. Recently, Chris has been diagnosed with Dementia. Our daughter is high functioning, but her disabilities do affect her life. She has cerebral palsy, learning disabilities, two eye diseases, & Asperger's syndrome. My husband works full-time, and I am home 24/7 with the kids. Since our son is terminal, we do not leave the house much due to the high risk of him exposed to germs. He was in the ICU twice recently and came close to dying from pneumonia.
When our babies were born there was not much information available for parents of preemies. What is even worse is there is truly nothing out there for those living this life of premature adult children and the daily health and mental challenges that these children and families face as they grow into adulthood. I hope to show others how families like mine deal with the lifelong illnesses and disabilities of premature births.
Being a parent of two adults, both with special needs, I know firsthand why being made to feel accepted in society is so very important. Over the years we have had many experiences, unfortunately, that have been very hurtful. To be made to feel different is something no one should ever have to experience. Everyone deserves to feel comfortable being who they are, and my heart goes out to those who are made to feel less than.